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1. Alex: The Life of a Child Alex: The Life of a Child

Manufacturer: Thomas Nelson
List Price: $13.98
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Summary: Very personal for me
Content: I watched the excellent TV movie made of this book when I was around 8 and then read the book over and over, until it fell apart. It absolutely broke my heart. When I was in high school and I met my first husband, I found out that he had lost a stepbrother ...

2. Recipes for the Specific Carbohydrate Diet: The Grain-Free, Lactose-Free, Sugar-Free Solution to IBD, Celiac Disease, Autism, Cystic Fibrosis, and Other Health Conditions (Healthy Living Cookbooks) Recipes for the Specific Carbohydrate Diet: The Grain-Free, Lactose-Free, Sugar-Free Solution to IBD, Celiac Disease, Autism, Cystic Fibrosis, and Other Health Conditions (Healthy Living Cookbooks)

Manufacturer: Fair Winds Press
List Price: $19.99
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Summary: gem of a recipe book
Content: I have a growing number of friends who have to follow a restricted diet and this book really fills the gap in my collection of recipe books by putting together delicious recipes that are completely thought out from a nutritional perspective. I no longer feel ...

3. The Power of Two: A Twin Triumph over Cystic Fibrosis The Power of Two: A Twin Triumph over Cystic Fibrosis

Manufacturer: University of Missouri Press
List Price: $29.95
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Summary: A Powerful Duet
Content: The Power of Two is an amazing "Duet" written by twin sisters with a powerful will to live inspite of the challenges of living with a deadly genetic disease. Each takes turns "singing" the melodies of her own unique yet shared experiences. This is no sugar-coated ...

4. Cystic Fibrosis: A Guide for Patient and Family Cystic Fibrosis: A Guide for Patient and Family

Manufacturer: Lippincott Williams & Wilkins
List Price: $49.95
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Summary: Best CF Book Ever
Content: My daughter was diagnosed in 1997 at 1 month of age. Fortunately for our family we had the best specialist to help diagnose and treat her condition almost from day 1 of her life. And her doctor is none other than Dr. Orenstein himself (or just Dr. O to us). ...

5. Alive at 25: How I'm Beating Cystic Fibrosis (Understanding Health and Sickness Series) Alive at 25: How I'm Beating Cystic Fibrosis (Understanding Health and Sickness Series)

Manufacturer: Longstreet Press
List Price: $24.95
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Summary: Inspriationally Dull
Content: I'll be honest, all in all I liked reading about Andy's journey with CF. I can understand how he feels and he does a good job of describing what he has been through. While reading i felt as though half of this book was written to help you understand andy and ...

6. Give Me One Wish: A True Story of Courage and Love Give Me One Wish: A True Story of Courage and Love

Manufacturer: W W Norton & Co Inc
List Price: $18.95
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Summary: Sad
Content: I was saddened to read about Christines struggle and eventual death of cystic fibrosis. This book does a great job of showing you the decline, and we watch as her lungs deteriorate until there is no quality of life left. It was awful because she loved life ...

7. Little Brave Ones: For Children Who Battle Cystic Fibrosis Little Brave Ones: For Children Who Battle Cystic Fibrosis

Manufacturer: BookSurge Publishing
List Price: $17.99
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Summary: amberrae
Content: I think this book is great. The perspective that it is written from makes it easy for a child to identify with and having the pictures of the treatments and all the children is great. I loved this book becuase it gives people of all ages a a little insight ...

8. The Stones Applaud: How Cystic Fibrosis Shaped My Childhood The Stones Applaud: How Cystic Fibrosis Shaped My Childhood

Manufacturer: Providence House Publishers
List Price: $24.95
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Summary: Very touching and sad...
Content: I really enjoyed this book, and read it in 2 sittings. The author was a courageous young woman and I'm amazed what she accomplished in such a short life. It is written in a pleasant conversational way that I felt like I knew her a bit when I finished.

9. Cystic Fibrosis: The Ultimate Teen Guide (It Happened to Me (the Ultimate Teen Guide)) Cystic Fibrosis: The Ultimate Teen Guide (It Happened to Me (the Ultimate Teen Guide))

Manufacturer: The Scarecrow Press, Inc.
List Price: $42.00
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Summary: Family members needing educating
Content: Definately a book that family members should read. Even though family members may be very close to someone with cf, there is still that denial that comes with cystic fibrosis, "he/she looks great". If this book had been around when my son was younger, I ...

10. Inner Strength: One Family's Experience With Cystic Fibrosis Inner Strength: One Family's Experience With Cystic Fibrosis

Manufacturer: Not Avail
List Price: $18.99
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Summary: Excellent book giving a family perspective on coping with CF
Content: Cloyce Jones is clearly a remarkable woman. She has a strength that most of us can only dream of. This book portrays her family's lives as they cope with death, illness and then the happiness that the birth of healthy child and eventually a successful lung ...




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